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Information on epilepsy: Epilepsy and learning disability

Generally, having a learning disability does not cause epilepsy, and having epilepsy does not cause learning disabilities. However, some people may have both epilepsy and learning disabilities if both are caused by the same underlying problem in the way their brain works.

What is a learning disability?

A learning disability is something that affects a person’s ability to learn new skills and information. It can also affect communication, and ability to live independently. The level and effect of learning disabilities will vary from one person to another. Some people with learning disabilities need support, while others are able to live more independent lives.

The causes of learning disabilities can vary but they generally happen either before birth or in childhood (before 18 years of age). Some learning disabilities are related to genetic conditions, such as Down’s syndrome, or are caused by a problem in the way the brain develops before birth. Brain damage occurring at birth or from infections in early childhood can also cause a learning disability.

How often do epilepsy and learning disability happen together?

Epilepsy is more common in people with a learning disability than in the general population. About 30% of people (nearly one in three) who have a mild to moderate learning disability also have epilepsy. The more severe the learning disability, the more likely it is that a person will also have epilepsy. Around 20% of people (one in five) with epilepsy also have a learning disability.

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Are seizures different in people with a learning disability?

There are many types of epileptic seizure and for anybody with epilepsy, they can affect awareness, feelings, movement or behaviour. For example, complex partial seizures can include automatisms (repetitive movements without purpose) such as lip smacking or fiddling with clothing. Confusion can also be part of a seizure, and many people have periods of confusion after a seizure.

Because unusual behaviour, appearing confused, or having difficulty in communicating can be part of having a learning disability for some people, their seizures may sometimes be hard to tell apart from behaviour relating to their learning disability.

What happens to someone with a learning disability during a seizure will not necessarily be any different from what happens to someone who does not have a learning disability. However, for some people with epilepsy and a learning disability, their seizures may be different in any of the following ways:

  • their seizures may be more frequent
  • their seizures may go on for longer
  • their seizures may be too complex to put into a typical seizure ‘category’
  • they might have more than one type of seizure, and could have one type of seizure closely following another
  • their seizures may include subtle movements or behaviours that can be difficult to recognise as a seizure, sometimes described as ‘atypical’.

When someone has unusual movements or behaviour, it can be helpful to film it, or write down details about what happens, if the person agrees that you can do this. This may help to see whether or not this is a seizure.

More information on types of seizure
More information about diagnosing epilepsy

Training in epilepsy awareness is available from NSE.
Information on NSE training services

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How is epilepsy treated in people with learning disabilities?

Treatment of epilepsy usually involves taking anti-epileptic drugs (AEDs) to prevent seizures from happening. Controlling seizures with AEDs can be more difficult in people with learning disabilities. Seizures may also be more severe or more frequent. In both cases, this may be due to the underlying cause or brain damage.

Understanding their own epilepsy, and how to manage the treatment for it, is important for everyone taking AEDs. For some people with learning disabilities, it can be difficult to understand exactly how and why they need to take their AEDs. They may need help understanding this from relatives, carers or the health professionals involved in their care.

For people whose seizures are not controlled by medication, there may be other treatment options to reduce seizures, including brain surgery. There are many things that are taken into account when someone is considered for surgery. The possible benefits and the risks for each individual need to be considered, and each case is looked at individually.

Information about medication for adults
Information about medication for children and young people
Information about surgery

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Can AEDs cause side effects or changes in behaviour?

As with all medications, drugs for epilepsy can cause side effects in some people. Some people with learning disabilities are more likely to have side effects. This may be because their brain has areas of damage that are more vulnerable to side effects of drugs. Side effects can include feeling drowsy or sick, problems with vision or changes in behaviour. Some people have poor attention, feel restless, or have slow or unsteady movement. A person’s mood can also be affected by AEDs in some cases. Side effects can be diffi cult to tell apart from behaviour related to a learning disability. Also, if someone is not able to express what they are feeling, they may be withdrawn, or show aggression or other challenging behaviour, which could be mistaken for a side effect of their AEDs.

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Can epilepsy impair 'cognitive functioning'?

Cognitive functioning is the process of knowing, thinking and learning. For people with learning disabilities and epilepsy, difficulties with this process are usually due to the underlying cause rather than due to epilepsy itself. If a person has stopped having seizures, and their drug plan can be kept simple, there may be less risk of their cognitive functioning being affected.

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Resource for people with epilepsy and learning disabilities

About Epilepsy is a pack designed with and for people with mild to moderate learning disabilities. It contains nine booklets about different aspects of living with epilepsy, including visiting the doctor, safety, medication, EEG and MRI. The pack uses words, symbols and photos and is available from the NSE online shop.

UK Epilepsy Helpline: 01494 601400
Monday - Friday 10am - 4pm

© The National Society for Epilepsy
April 2008

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How often does epilepsy and learning disability happen together?

Are seizures different in people with a learning disability?

How is epilepsy treated in people with learning disabilities?

Can AEDs cause side effects or changes in behaviour?

Can epilepsy impair ‘cognitive functioning’?

Resource for people with learning disabilities

Pdf of Epilepsy: Learning disabilities (268KB)
Pdf of Epilepsy: Learning disabilities (268KB)
About pdfs



  NSE is the largest medical charity for epilepsy in the UK. We provide information and support to professionals and people affected by epilepsy. We also provide care for people with epilepsy through medical, residential and rehabilitation services.