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Generally,
having a learning disability does not cause epilepsy, and having epilepsy
does not cause learning disabilities. However, some people may have both
epilepsy and learning disabilities if both are caused by the same underlying
problem in the way their brain works.
What
is a learning disability?
A learning disability
is something that affects a person’s ability to learn new skills and information.
It can also affect communication, and ability to live independently. The
level and effect of learning disabilities will vary from one person to
another. Some people with learning disabilities need support, while others
are able to live more independent lives.
The causes of learning
disabilities can vary but they generally happen either before birth or
in childhood (before 18 years of age). Some learning disabilities are
related to genetic conditions, such as Down’s syndrome, or are caused
by a problem in the way the brain develops before birth. Brain damage
occurring at birth or from infections in early childhood can also cause
a learning disability.
How
often do epilepsy and learning disability happen together?
Epilepsy
is more common in people with a learning disability than in the general
population. About 30% of people (nearly one in three) who have a mild
to moderate learning disability also have epilepsy. The more severe the
learning disability, the more likely it is that a person will also have
epilepsy. Around 20% of people (one in five) with epilepsy also have a
learning disability.
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Are
seizures different in people with a learning disability?
There are many types
of epileptic seizure and for anybody with epilepsy, they can affect awareness,
feelings, movement or behaviour. For example, complex partial seizures
can include automatisms (repetitive movements without purpose) such as
lip smacking or fiddling with clothing. Confusion can also be part of
a seizure, and many people have periods of confusion after a seizure.
Because unusual behaviour,
appearing confused, or having difficulty in communicating can be part
of having a learning disability for some people, their seizures may sometimes
be hard to tell apart from behaviour relating to their learning disability.
What happens to someone
with a learning disability during a seizure will not necessarily be any
different from what happens to someone who does not have a learning disability.
However, for some people with epilepsy and a learning disability, their
seizures may be different in any of the following ways:
- their seizures
may be more frequent
- their seizures
may go on for longer
- their seizures
may be too complex to put into a typical seizure ‘category’
- they might have
more than one type of seizure, and could have one type of seizure closely
following another
- their seizures
may include subtle movements or behaviours that can be difficult to
recognise as a seizure, sometimes described as ‘atypical’.
When someone has unusual
movements or behaviour, it can be helpful to film it, or write down details
about what happens, if the person agrees that you can do this. This may
help to see whether or not this is a seizure.
More
information on types of seizure
More
information about diagnosing epilepsy
Training in epilepsy
awareness is available from NSE.
Information on NSE training
services
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How
is epilepsy treated in people with learning disabilities?
Treatment of epilepsy
usually involves taking anti-epileptic drugs (AEDs) to prevent seizures
from happening. Controlling seizures with AEDs can be more difficult in
people with learning disabilities. Seizures may also be more severe or
more frequent. In both cases, this may be due to the underlying cause
or brain damage.
Understanding their
own epilepsy, and how to manage the treatment for it, is important for
everyone taking AEDs. For some people with learning disabilities, it can
be difficult to understand exactly how and why they need to take their
AEDs. They may need help understanding this from relatives, carers or
the health professionals involved in their care.
For people whose seizures
are not controlled by medication, there may be other treatment options
to reduce seizures, including brain surgery. There are many things that
are taken into account when someone is considered for surgery. The possible
benefits and the risks for each individual need to be considered, and
each case is looked at individually.
Information
about medication for adults
Information about medication for children and
young people
Information about surgery
Can
AEDs cause side effects or changes in behaviour?
As with all medications,
drugs for epilepsy can cause side effects in some people. Some people
with learning disabilities are more likely to have side effects. This
may be because their brain has areas of damage that are more vulnerable
to side effects of drugs. Side effects can include feeling drowsy or sick,
problems with vision or changes in behaviour. Some people have poor attention,
feel restless, or have slow or unsteady movement. A person’s mood can
also be affected by AEDs in some cases. Side effects can be diffi cult
to tell apart from behaviour related to a learning disability. Also, if
someone is not able to express what they are feeling, they may be withdrawn,
or show aggression or other challenging behaviour, which could be mistaken
for a side effect of their AEDs.
Can
epilepsy impair 'cognitive functioning'?
Cognitive functioning
is the process of knowing, thinking and learning. For people with learning
disabilities and epilepsy, difficulties with this process are usually
due to the underlying cause rather than due to epilepsy itself. If a person
has stopped having seizures, and their drug plan can be kept simple, there
may be less risk of their cognitive functioning being affected.
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Resource
for people with epilepsy and learning disabilities
About Epilepsy is a pack designed
with and for people with mild to moderate learning disabilities. It contains
nine booklets about different aspects of living with epilepsy, including
visiting the doctor, safety, medication, EEG and MRI. The pack uses words,
symbols and photos and is available from the NSE
online shop.
UK
Epilepsy Helpline: 01494 601400
Monday - Friday 10am - 4pm
©
The National Society for Epilepsy
April 2008
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