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The
trustees of the National Society for Epilepsy (NSE) have agreed the priorities
for the charity's future. This follows the recent consultation with key
stakeholders including staff, residents and the local community.
The consultation found
that:
- 72% of people said
they believed NSE should continue to provide residential and nursing
care at Chalfont
- 60% said they believed
NSE should be developing community based services
- 90% said medical
research to find seizure freedom for all should either be NSE's exclusive
area of work (11%) or a high priority (79%)
- 79% said NSE should
continue to provide information services such as the helpline and EIN
service
- 64% said NSE should
sell off some of its land assets if necessary to fund its future plan.
In the light of these
findings, NSE is committed to staying at Chalfont where residential care
will be refocused towards people with learning disabilities as well as
epilepsy. The number of care beds offered will be reduced from the current
200 beds to 80 by 2011. In tandem, in line with current government thinking,
the charity aims to develop more community-based services. The aim is
to give greater choice for people living with learning disabilities and
epilepsy.
Chief Executive Graham
Faulkner said:
"We plan to have
a smaller number of care homes at the Chalfont Centre, with people living
in small groups. We will explore all opportunities for loans and fundraising
to fund this development, but if these don't generate sufficient funds
within a reasonable time scale surplus buildings may be sold."
Research will remain
a high priority for the charity, with a vision of achieving seizure freedom.
This will include the launch of a major new £5 million epilepsy genetics
appeal. The charity is already undertaking groundbreaking genetics research
to improve diagnosis, treatment and understanding of epilepsy. The new
appeal will take this work forward in a new world-class genetics laboratory.
Mr Faulkner said:
"Getting the funding
right will be central to our plans, but so too will be getting the planning
permission for new build. We recognise the opposition to our previous
redevelopment plans, and are now committed to securing our future with
the least disruption to the local community. We hope to work with the
local community and with the planning authorities to ensure that any
new build is acceptable before putting forward planning applications."
Other priorities include
seeking partnerships with other organisations to avoid duplication of
services, increased commitment to working with other organisations through
the work of the Joint Epilepsy Council and a commitment to increase fundraised
income over the next five years.
In agreeing these
priorities for the future, the trustees have taken full account of the
opinions expressed in the recent consultation. More than 3000 consultation
documents were distributed. Over 550 replies were received. The priorities
will now be incorporated into a revised strategic plan for the next five
years (2006-2011), which will be published shortly.
The consultation was
the second stage of a major review of all the charity's areas of operation.
This followed November's announcement that the Office of the Deputy Prime
Minister's had dismissed our redevelopment appeal. The decision led to
the formation of a strategic review group that was tasked with examining
the value and benefit of all NSE's operations. The consultation document
was based on the findings of this review group.
The consultation document
went to an extensive list of stakeholders including local authorities,
NSE members and associate member, CSCI, staff, service users, trades unions,
health authorities, GPs, NSE parents and friends and elected representatives
of the local community including MPs and local county, district and parish
councillors. It was also available on the Internet.
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October 2006
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